|
本帖最後由 新鮮人 於 2010-10-4 07:40 編輯
四、直至滅亡
顯然,方舟子之流炮製舉報信的唯一目的就是要使車輪滾滾的「肖氏手術」列車脫軌——能夠車毀人亡那
就更是意外的驚喜了。那麼,他們的目的達到了嗎?
本來,對於「橫渡太平洋」會有什麼樣的結果,除了方舟信徒們之外,任何一個人僅憑藉簡單的常識就可
以預測得到。而事實是,由於方舟信徒們的瘋狂努力,他們把自己搞得更慘。
1、重返SBC
就在eddie 宣布「肖傳國檢舉信準備好了」的當天,3 月1 日,有個ID 是observer 的好事之徒,很可能是
eddie 本人,將這封舉報信以「Be careful with Xiao Procedure」(小心肖氏手術)為題,張貼到了那個曾讓
新語絲人慘遭敗績的灘頭陣地,SBC 論壇。對此,版主Dodger67 警告說:限你在48 小時之內為你的指控
提供證據,否則的話,帖子將被刪,ID 將被封。(http://spinabifidaconnection.com/showthread.php?t=1828)。
3 日,眼看大限來臨,Yush 身披xysergroup 這件馬甲上陣了。他對這封舉報信的來歷和他們發現SBC 論壇
的經過予以解釋。而SBC 的另一位版主,ID 為LisaJoy,則告訴Yush,NIH 資助的臨床試驗,受Office of
Human Research Protections 的轄制,所以他們應該向這個機構投遞舉報信。此時,Yush 這位「最近五年一
直密切跟蹤調查與這項手術有關的事件」的御用批肖專家,才如夢初覺,知道「this case exactly falls within
the scope of OHRP's responsibilities」。他大概沒有看出自己的無知是多麼的可笑。
應該說,不論是SBC 的版主,還是該網站的擁有者Barb,此時對這封舉報信的態度都是比較中立的,對肖
氏手術的效果也都將信將疑。假如Yush 此時見好就收,舉報信的第四條建議,「我們忠告患者們,在決定
參加臨床試驗或到中國進行治療前,要慎重考慮」,或許能夠達到。可是,天生的劣根和在新語絲上養成
的惡習,使他不由自主地又對那位脊柱裂病人的母親lonibaloney 展開了攻擊。於是LisaJoy 在3 月7 日下了
封口令:
「xysergroup -- We do not want our forum used to argue about this matter. Providing access to information
so that people can make their own determinations is okay. If we get more of this type of argument, we'll
have to delete the thread, which would be a shame, since this is a matter of great interest to many people.」
(新語絲團伙:我們不希望我們的論壇被利用為爭論這件事的平台。提供信息的來源,讓讀者作出
自己的判斷是可以接受的。如果你繼續從事此類爭論,我們將不得不把這個帖子刪去,那將非常遺
憾,因為這件事是很多人所關心的。)(http://spinabifidaconnection.com/showthread.php?t=1828&page=2)。
Yush 雖然表面上就此在SBC 啞巴了,但他卻在暗地裡跟蹤lonibaloney 到另一個論壇,繼續騷擾對方(下
詳)。
那麼,SBC 這個灘頭陣地最終鹿死誰手了呢?兩個多月後,5 月14 日,SBC 的主人Barb 在肖傳國的主貼,
「I am Dr. Xiao, inventor of the Xiao Procedure」,後面跟帖說:
「I had a very interesting talk the other day with our new urologist here in Denver. We were discussing
surgical options for C in the near future and I brought up this "new procedure". He asked me right away if it
was the "Xiao" and when I confirmed he was very positive about it. Apparently he was able to see Dr. Xaio
speak a few years ago and was very intrigued. He has been following the research since and finds it to be
very promising. I don't know if C would be a good candidate and I am actually betting not but my level of
comfort with this procedure has certainly been increased.」 (前幾天我和丹佛一位新來的泌尿科醫生進
行了一次有趣的談話。我們討論在不久的將來給C 做手術的可能,我提起一個「新手術」。他馬上
問我是不是肖氏手術,我說是。他對這個手術的態度非常積極。顯然,他在幾年前曾聽過肖大夫的
講演,從此對它產生了興趣,並且一直跟蹤這項研究。他認為這項技術非常有發展前景。我不知道
C 是否適合這項手術,我實際上希望他不適合。但是,我對這項手術的好感卻毫無疑問地增強了。)
(http://spinabifidaconnection.com/showthread.php?t=1625&page=5)。
再過一個多月,6 月25 日,有一個病孩兒的母親在「Be careful with Xiao Procedure」這個帖子後面跟了下
面這個帖子:
「Hello. I am writing to give a perspective on this surgery from someone who has been through it. Our
(then 7-year-old) daughter had this surgery performed in April of 2007 at Beaumont Hospital in Michigan
as part of their clinical study. Dr. Kenneth Peters, from Beaumont Hospital, and Dr. Xiao himself performed
her surgery. We met Dr. Xiao on the morning of our daughter's surgery and found him to be a likable,
professional, and highly intelligent man. Both he and Dr. Peters made it clear, once again, that there were
no guarantees from this surgery.
「The day after her surgery, we tried to get our daughter up to walk and her legs dangled like a rag doll.
She couldn't walk due to the invasiveness of the surgery on her spine. The doctors had to peel back many
layers of scar tissue due to the inuterine surgery she had at the age of 24 weeks gestation to close her SB
lesion. I thought, "What have we done?!?" and seriously wondered if the possible effects from the surgery
would be worth the long and difficult recovery.
「Fast forward to today, 3 years after the surgery. Our daughter basically relearned how to walk through
much physical therapy and coaching from my husband and me. But it took about a year to a year and a half
to get her back to her walking baseline. She has not achieved bladder continence from the surgery, but is
nearly bowel continent now. We credit the surgery (and much prayer!) for the positive changes in her bowel
function. Given what we know now, even with the extremely difficult recovery, we would do it all again to
get the results that we did. The staff at Beaumont seemed genuinely disappointed that our daughter was not
one of their "home runs" (their term, meaning complete bowel and bladder continence achieved as a result
of the surgery)..... but she could have been. At least a few of the patients from her round of 8 surgeries
WERE home runs, so this surgery is far from a hoax. We would do it all again for the chance of our
daughter to achieve bowel and bladder continence! This surgery has significantly improved the quality of
our daughter's life!」(http://spinabifidaconnection.com/showthread.php?t=1828&page=3。粗體字原有)。
(哈嘍,我以一位過來人的身份來介紹一下這項手術。我們的女兒,當時7 歲,於2007 年4 月在密
西根州的Beaumont 醫院做了這個手術,這是他們臨床試驗的一部分。手術由Beaumont 醫院的
Peters 醫生和肖醫生本人來做。在手術那天的早上,我們和肖醫生見了面,我們發現他非常和善可
親、專業、並且極具智慧。他和Peters 醫生再次重申,這項手術沒有任何承諾。
(手術的第二天,我們試著讓我的女兒行走。可是,她的腿搖擺無力,像個布娃娃。由於這個手術
深入到她的脊椎,她不能行走。這些醫生必須剝開許多層的傷疤組織——它們來自在懷孕24 周時
所對她所作的一項手術——,才能夠把她的脊柱裂痕封閉。我當時想,我們都幹了些什麼啊?!?
與這項手術的可能益處相比,長期、艱難的恢復過程是否值得?
(長話短說。到了手術三年後的今天。我們的女兒通過理療及我和我丈夫的訓練,幾乎是重新學會
了走路。但是,回到術前的行走水平花了一年到一年半的時間。這項手術沒有使她獲得自主控制膀
胱的能力,但是,現在她幾乎完全能夠自主大便了。我們把這歸功於這項手術以及我們的祈禱。考
慮到所有這一切,包括極為艱難的恢復過程,為了得到現在這樣的結果,我們也願意再做一次這個
手術。Beaumont 醫院的醫護人員對我女兒沒有能夠成為他們的 「全壘打」(他們的術語,意味術
後排泄完全自主)中的一員表示了真誠的失望。但是,她完全有那個可能。至少,在她那批8 個病
人中,有幾個是全壘打,所以,這項手術遠不是什麼詐術。即使僅僅為了給我們女兒一個獲得自我
排泄的可能性,我們就願意重頭再來一次!這項手術使我們女兒的生活質量顯著改善!)
至此,方舟子們算是徹底地失去了SBC 這個灘頭陣地。
2、轉戰CareCure 論壇
SBC 論壇是脊柱裂病人及家屬的自助論壇。除了這個論壇之外,美國羅格斯大學神經科學系主任、世界著
名的脊髓損傷康復專家楊詠威(Wise Young)還主持一個CareCure Community 網站,從專業的角度為脊柱
損傷病人提供諮詢幫助。換言之,SBC 是先天性脊柱裂病人的自助論壇,而CareCure Community 則是為後
天性脊髓損傷病人提供服務的專業網站。
3 月9 日,剛剛被SBC 論壇趕出來的Yush,又身披xysergroup 這件馬甲,把舉報信張貼到了CareCure 網站
的論壇上。(http://sci.rutgers.edu/forum/showthread.php?t=132194)。那麼,Yush 是怎麼找到CareCure 的呢?原來,那位脊柱裂女孩兒的母親,
lonibaloney,離開SBC 之後,又到CareCure 發了一個帖子,其中說:
「The one thing that is bothering me a little is a group of people that are associated with a self appointed
fraud cop in China. These guys have been hounding another forum that I belong to and its gotten pretty ugly.
They have all kinds of terrible allegations about Dr Xiao but not proof. More of a smear campaign. I am
willing to read anything they present as long as I don't have to visit their site, which I believe, generates
income as people visit. I'm surprised they haven't found this forum. I'm happy to see a much more
informative, educated and calm conversation over here.'」 (讓我感到煩惱的是,一伙人依附於一個自
命的反腐警察,他們不斷騷擾我所在的另一個論壇,把那裡搞得烏煙瘴氣。他們對肖醫生提出各種
各樣的嚇人的指控,但卻沒有證據。不過就是抹黑行動而已。只要不去他們的網站,我願意閱讀他
們提供的任何資料。我相信,他們的網站從訪客的點擊得到收入。我很吃驚,他們竟然還沒有發現
這個論壇。我很高興在這裡看到一個更有內容的,更有有知識的,更為冷靜的交流。)(http://sci.rutgers.edu/forum/showthread.php?p=1180761#post1180761)。
而在張貼了公開信之後5 分鐘,Yush 就跑到lonibaloney 的帖子後面跟帖,對她繼續騷擾。Lonibaloney 忍
無可忍,對Yush 發出了這個措辭嚴厲的帖子:
「Listen xysergroup: Why are you following me and what do you want from me. I'm convinced now that
you've hacked my computer and found me here. There is no way you have shown up here out of
conincidence.
「I read your stuff and my stuff and other peoples stuff, now I will decide what I think. I honestly did not
see any real substantial proof of your allegations. You cannot force your opinions on anyone. Just post your
stuff and leave it alone. Your close to getting booted off the other forum so the same will happen here if you
continue this type of behavior.」(http://sci.rutgers.edu/forum/showthread.php?t=126166&page=6)。
(聽著,新語絲團伙:你們為什麼跟蹤我?你們想從我這裡得到什麼?我現在確信你們襲擊了我的
電腦,發現我在這兒。你們到這裡來是出於巧合的可能性為零。我讀了你們的東西,也讀了我的東
西和別人的東西。現在我將決定自己怎麼想。從你們的指控中,我實在看不到任何實質性的證據。
你們不能把自己的觀點強加於人。把你們的那些東西貼上來,別再管它。在另一個論壇,你們差點
兒被踢出去,如果你們在這裡還繼續那麼乾的話,你們的下場不會兩樣。)
那麼,Yush 張貼的公開信收到了什麼效果了呢?網站主人楊詠威在當天就回復了一篇長帖:
xyusergroup,
I suggest that you append your real name(s) and credentials to the letter of complaint that you just posted on
CareCure. You appear to be anonymously making very serious allegations of misconduct against a wellknown
clinician. While this may be customary in China, this is not acceptable behavior in the United States.
According to a link in your post, Dr. Xiao Chuan-Guo filed a defamation lawsuit against Sohu Information
Technology Inc., the University Press of Peking Union Medical College, and Fang Shi-min in 2006. Are
you one of the party that he filed the lawsuit against, i.e. Fang Shi-min (pen-name Fang Zhou-zhi)?
Or are you representing the "intellectuals in China" who are listed as signatories of a letter protesting the
2006 judgment by the Jianghan District Court of Wuhan City against the Fang Shi-min, ordering him to
apologize publicly and compensate Dr. Xiao?
Who are the "New Threads Volunteers"? Whoever you are, please do not involve CareCure in the
acrimonious personal exchanges between you and Dr. Xiao. If you are interested in discussing the merits of
Dr. Xiao's method and whether or not people with spinal cord injury can benefit from the treatment, you are
of course very welcome to post and discuss the method although your credibility would be much enhanced
if we knew who you are.
One of the rules of this site is that members must not attack another member of CareCure. The complaint
letter that you have posted is a personal attack of Dr. Xiao. Since Dr. Xiao may very well be a member of
CareCure, I suggest that you avoid further personal attacks of him. Since the letter of complaint has been
published elsewhere, I will allow the letter to remain on this site but please confine futher discussion to the
surgical method.
In another thread, I had summarized the published works of Dr. Xiao reporting his scientific and clinical
findings. I had also described what I have seen at Dr. Xiao's presentations at public symposia. Incidentally,
the first presentation that I saw Dr. Xiao make was at the First International Spinal Cord Injury Treatment
and Trials Symposium (ISCITT) held in December 2005 and sponsored by ChinaSCINet. I think that
ChinaSCINet may have had some DVD's of that symposium for sale and there may be some left.
新語絲使用者團伙(不知是有意還是無意,楊詠威一直把xysergroup 寫成xyusergroup):
我建議你們在剛剛貼上來的舉報信的後面,附上你們的真實姓名和資歷。你們看似正在匿名指控一
位著名的臨床醫生。這種行為在中國也許司空見慣,但在美國卻是不可接受的。 |
|